Mindfulness loaded with troubling assumptions

EDS and Chronic Pain News & Info

Mindfulness is loaded with (troubling) metaphysical assumptions | Aeon Essays | Sahanika RatnayakeJul 2019

Three years ago, when I was studying for a Masters in Philosophy at the University of Cambridge, mindfulness was very much in the air.

The Department of Psychiatry had launched a large-scale study on the effects of mindfulness in collaboration with the university’s counselling service. Everyone I knew seemed to be involved in some way.  

I’m entirely fed up with mindfulness being forced upon pain patients as a supposedly effective method of “pain management”. 

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Inaccurate Information Provided To Lawmakers

EDS and Chronic Pain News & Info

Damaging State Legislation Regarding Opioids: The Need To Scrutinize Sources Of Inaccurate Information Provided To Lawmakers – free full-text /PMC6857667/Nov 2019

Lawmakers are making laws on the basis of inaccurate information provided by persons without expertise in chronic pain management.

The whole country is awash in PROPaganda spread by those who do not understand, much less experience themselves, the extreme physical limitations, subsequent mood disorders, negative social impact, and unnecessary suffering caused by constant unrelieved pain.

On January 22, 2019, a Massachusetts State Representative introduced House Bill 3656, “An Act requiring practitioners to be held responsible for patient opioid addiction”.   

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Naproxen shows anti-viral activity against flu

EDS and Chronic Pain News & Info

Pain reliever shows anti-viral activity against flu — ScienceDaily Mar 2013Source: American Society for Microbiology

This was a total surprise to me and, considering the specter of a new coronavirus spreading across the globe, I thought this information could be very useful.

New influenza vaccines must be developed annually, because the surface proteins they target mutate rapidly. The researchers found a much more stable, reliable target for anti-influenza activity.

The so-called ribonucleoprotein complexes are necessary for replication, and the researchers realized they could target the nucleoprotein, preventing assembly of the complexes. Because of its vital function, the nucleoprotein is highly conserved, making it a good potential target for antiviral drugs.  

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World’s most Popular Painkiller is Hazardous to Health

EDS and Chronic Pain News & Info

World’s most popular painkiller poses risk with long-term use: study | CTV News – Mar 2015

I find it baffling that despite knowing for years how damaging this drug can be, I read about it being recommended for just about any pain, anywhere, any time.

Doctors may be under-estimating the risks to patients from long-term use of paracetamol, also known as acetaminophen, the world’s most popular painkiller, researchers said Tuesday.

Chronic users of the drug — people who typically take large, daily doses over several years — may increase their risk of death, or kidney, intestinal and heart problems, they found.

So why is it still being pushed on patients at every turn? 

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Chronic-pain bill aims to protect providers and patients

One step in the right direction?

EDS and Chronic Pain News & Info

Chronic-pain bill aims to protect providers and patients | Health | unionleader.com – By Shawne K. Wickham New Hampshire Sunday News – Jan 2020

Finally, at least in Massachusetts, there are signs of push-back against all the inane and arbitrary opioid restrictions.

Senate Bill 546 calls for providers to “administer care sufficient to treat a patient’s chronic pain based on ongoing, objective evaluations of the patient without fear of reprimand or discipline.”

It also states that patient care and prescribing of medication, including opioid painkillers, should not be dictated by “pre-determined” guidelines.

This kind of logical reasoning is far too rare these days, but I take it as a hopeful sign that some folks are starting to wake up to the facts – facts that have been successfully buried by all the media-hype based on endlessly repeated PROPaganda. 

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Update: Bodily Harm from Chronic Pain Part 2

EDS and Chronic Pain News & Info

Chronic pain, unmedicated and just by itself, causes measurable biological damage affecting our physical and mental health. I wish more people knew this so they’d stop assuming that “pain won’t kill you, but opioids will”.

The opposite is true: Constant pain, in addition to causing physical harm,  impairs and eventually destroys your Quality of Life (see tag “suicide” for more links to chronic pain).

Chronic pain will make you wish for death, but opioids will only kill you if you take much more than prescribed.

So I decided to update the older list/reference page of posts about various kinds of Bodily Damage from Uncontrolled Chronic Pain by starting a second page:

Bodily Damage from Uncontrolled Chronic Pain Part 2  has more recent posts starting September 2017 up to December 2019

(You can also use tag ‘PAIN-DAMAGE‘ to find them all posts on this topic)

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Does The Rare Disease EDS Plague Fibromyalgia?

I’ve never had hypermobile joints – in fact, I had to drop out of ballet when I was in second grade because I would have needed double lessons so they could stretch my short tendons and ligaments (my parents couldn’t afford that). I do have hip dysplasia in the right; sitting on the floor cross-legged, my left leg is on the floor while my right knee is about a foot and a half above the floor.

Anyone out there who has had symptoms since childhood but NO hypermobility?

EDS and Chronic Pain News & Info

Does The Rare Disease EDS Plague Fibromyalgia? – February 23, 2018 – By Celeste Cooper

hEDS = EDS hypermobile type, previously known as EDS type III or joint hypermobility syndrome.

According to the National Organization for Rare Disorders (NORD), there are many Ehlers Danlos Syndromes and related disorders caused by different genetic defects in collagen. We will focus on the most common type of Ehlers-Danlos syndrome in this article.

this type of EDS can co-occur in fibromyalgia and myofascial pain syndrome even though it is thought to be a rare condition. Fibromyalgia and EDS also share connections you might not have considered. 

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EDS, HSD More Prevalent Than Previously Thought

EDS and Chronic Pain News & Info

EDS, HSD More Prevalent Than Previously Thought in UK, Study Finds – by Joana Carvalho, MSc – Jan 2020

The rare disease status of Ehlers-Danlos syndrome (EDS) and hypermobility spectrum disorder (HSD) should be re-evaluated, as both conditions seem to be more prevalent than previously thought, a U.K. study suggests.

A nationwide Danish cohort study [2017] had reported that EDS, a connective tissue disorder, affects 20 per 100,000 people, an incidence that falls within the scope of a rare disease according to European Union standards (less than 50 cases in 100,000 people).

However, scientists are now convinced that the prevalence of EDS and HSD could be much higher than previously thought, because many patients are initially misdiagnosed, which can skew the estimations of disease prevalence.  

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